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Monday, March 24, 2008

  • Currently Listening
    Saturday Nights and Sunday Mornings
    By Counting Crows
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    only in dreams

    Well! I just spent $60 on amazon. All I wanted to do was order a CD...but I got carried away (as is the norm when I shop) and bought 5 CDs and some other crapolaaa that I do not need! Oh well. When the packages arrive in the mail I will be happy about it. Especially because they all ship on different days so the next couple of weeks will be like CHRISTMAS! :) haha I'm such a child.

    Easter was fun. My family is ri-goddamn-diculous and everyone eats and drinks themselves into a loud mess until we're all laughing, yelling and talking at the same time. Entertaining at the very least.

    Also, my friends are insane. Josh showed up to my apartment on Saturday with the most horrific moustache you've ever seen. Sick. The rest of the day/night was spent making fun of it. That pretty much explains my whole weekend. :)

    haha.
    laterrrr


    OH MY GOSH p.s.... Counting Crows. DTE. August 29th. Adam Duritz is coming just for me...and I cannot wait.

Wednesday, March 19, 2008

  • I can easily break

    I have inflammatory arthritis. And probably Chron's. The arthritis comes as a result of the Chron's.

    I have 30 more Dr. appointments coming up.

    Yesterday= rheumatologist...4 prescriptions later...
    Friday=appt. w/ regular doctor for follow-up about steroids and discussion about referrals
    Next week=Gastroenterologist for the first meeting
    Same week=the big test (ew) @ the GI
    4 weeks=follow up w/regular Dr.
    6 weeks=follow up w/Rheumatologist

    I'm glad that I'm getting some answers. The answers suck, granted...I'll be on meds for the rest of my existance and won't start feeling better for about a month. :p The good news is that we've figured it out (we think...fingers crossed) and that I have a prescription for some pain meds. WOO!

    the end for now.
    I'm thinking tonight I'm going to...(ready??...READY??) SLEEP.
    yessss.

Tuesday, March 11, 2008

  • my heart's all over the world tonight...

    So I don't have Celiac disease.
    The doctor called today and that particular test came back negative.

    I don't think I've written about the tests since I got results back... I don't remember.
    The tests came back negative for Lupus and Rheumatoid Arthritis. My kidneys are safe. My liver is healthy. They eliminated the questions about other auto-immune diseases and a few thoughts on lymphoma (::sigh::).
    The test results showed a huge problem with internal swelling and inflammation in my body. Unfortunately, though, a test like that can't tell you what's WRONG.
    So we waited for the Celiac results. If they came back positive, it would be easy to say where the swelling was and send me on my way to the correct doctor and get my diet situated so I'd be...ALL BETTER! But it didn't turn out that way. The test came back negative. I don't have a gluten allergy. That diagnosis would have been easy (sure changing the diet sucked when I tried...but despite that). It would have come to me wrapped up in a little bow and I would have started getting better and yay happy happy joy joy.
    Nope.
    Not Celiac. SO...what's wrong, you ask? Wouldn't you like to know. They put me on Steroids to stop the swelling inside (wherever that might be) four days ago and it has helped IMMENSELY. I have had an appetite for the first time in months and GOD it feels so good just to eat. I have forgotten that I ENJOY eating!!!! My ankles are still KANKLES which sucks but the aching in my body has gone down significantly since I started on the steroids. But now I have to go back for (::GASP::) MORE BLOOD WORK!! yayy! Aren't you excited about that? I know I am. They're checking something with my muscles next. They haven't told me what that means but they are also referring me to a Rheumetologist who I will see in the next couple of weeks. They will help determine where the swelling is so we can find (eventually) a diagnosis.
    All of this is a big jumble of NOTHING, really. It takes a long time to figure out what the hell is going on in there and I am so ready for it to be over (as I've made terribly clear). I'm worried that something is going to end up being very wrong now that I know it's not a simple answer like a gluten allergy. They even seem to be stepping away from Chrons, which is strange. I suppose this is where all I can do is hope for the best and continue doing what the doctors are telling me to do. The meds they put me on help a lot and I'm thankful that we're on the road to getting there. Soon enough, right?

    Yes. Soon enough.

Friday, March 07, 2008

  • Currently Listening
    Jukebox - Deluxe Edition
    By Cat Power
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    "i love you"...me either...

    My kidneys are good. Liver is fine. Rheumatoid is out.
    That's good I suppose.
    The bad results is the inflammation. Coming from a mystery area.
    Today my feet are swollen, too. My feet and something mysterious inside of me. Goodie.
    The Celiac test will come back today sometime...or Monday.
    Once they know if it's celiac or not, they'll be able to tell me which specialists I have to go to next. Then maybe I'll get a real diagnosis instead of bullshit tests and tests and tests and WAIT MORE TESTS!
    I want to feel better.

Thursday, March 06, 2008

  • Currently Listening
    Lust Lust Lust
    By The Raveonettes
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    never really...

    So tomorrow I find out what's wrong with me. I guess. It might just be the beginning of weeks upon weeks of torture and further tests. I hope not. I've been through this before. Bloodwork. Oh wait, more bloodwork. Oh, hey, can we have some more of your blood? We only took half of it...
    I hate this. It's been quite enough. I've done the whole 'non-result' thing so many times that I'm anticipating this big reveal to be really bad. I actually had the thought last night, while going to sleep, 'what if I die?' What if, after all this time, they find out that I really DO have cancer and it's been so long that it's spread to every inch of my insides. Haha. That is not funny. At all. But I am a hypochondriac and after a year or more of feeling like shit. and then shittier...I'm kind of expecting the worst.
    There's only so many times I can stand up to greet Tom and black out falling into him before it stops being cute.

    I'm ready to feel better.
    Please.
    Really this time. I want to feel better.

Iliketopaint

  • Visit Iliketopaint's Xanga Site
    • Name: Emily
    • Birthday: 7/31/1986
    • Gender: Female
    • Member Since: 11/30/2004

About Me

  • I do...like to paint. I love art, i love music, i love my friends and i love you! oh, and p.s. im a dork

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