So I don't have Celiac disease.
The doctor called today and that particular test came back negative.
I don't think I've written about the tests since I got results back... I don't remember.
The tests came back negative for Lupus and Rheumatoid Arthritis. My kidneys are safe. My liver is healthy. They eliminated the questions about other auto-immune diseases and a few thoughts on lymphoma (::sigh::).
The test results showed a huge problem with internal swelling and inflammation in my body. Unfortunately, though, a test like that can't tell you what's WRONG.
So we waited for the Celiac results. If they came back positive, it would be easy to say where the swelling was and send me on my way to the correct doctor and get my diet situated so I'd be...ALL BETTER! But it didn't turn out that way. The test came back negative. I don't have a gluten allergy. That diagnosis would have been easy (sure changing the diet sucked when I tried...but despite that). It would have come to me wrapped up in a little bow and I would have started getting better and yay happy happy joy joy.
Nope.
Not Celiac. SO...what's wrong, you ask? Wouldn't you like to know. They put me on Steroids to stop the swelling inside (wherever that might be) four days ago and it has helped IMMENSELY. I have had an appetite for the first time in months and GOD it feels so good just to eat. I have forgotten that I ENJOY eating!!!! My ankles are still KANKLES which sucks but the aching in my body has gone down significantly since I started on the steroids. But now I have to go back for (::GASP::) MORE BLOOD WORK!! yayy! Aren't you excited about that? I know I am. They're checking something with my muscles next. They haven't told me what that means but they are also referring me to a Rheumetologist who I will see in the next couple of weeks. They will help determine where the swelling is so we can find (eventually) a diagnosis.
All of this is a big jumble of NOTHING, really. It takes a long time to figure out what the hell is going on in there and I am so ready for it to be over (as I've made terribly clear). I'm worried that something is going to end up being very wrong now that I know it's not a simple answer like a gluten allergy. They even seem to be stepping away from Chrons, which is strange. I suppose this is where all I can do is hope for the best and continue doing what the doctors are telling me to do. The meds they put me on help a lot and I'm thankful that we're on the road to getting there. Soon enough, right?
Yes. Soon enough.
Chatboard (0)