http://www.youtube.com/watch?v=VKqG0hX3L3s

http://www.youtube.com/watch?v=h-D7gwx1FeY

http://www.youtube.com/watch?v=-T9KPHcBxog

just a couple videos of my kiddos.  f you want to see more just look to the right after the first one and click more from mcclatchey3, a whole list of little movies pops up...

enjoy!

walter reed canceled

THEY CANCELED EVERYTHING BECAUSE SHE IS TOO SICK TO GO!  AHHHH!  I'M SO FRUSTRATED!  SHE HAS BEEN INTO THE HOSPITAL TWICE THIS WEEK FOR FLUIDS.  SHE HAS SOME VIRUS.  NOTHING NEW, BUT I'M JUST SO SICK OF BAD TIMING!  I JUST WISH SOMETHING WOULD GIVE AND THINGS WOULD START LOOKING UP FOR US. 

WE DID GET A RUSHED APT AT UNC FOR THE 22ND TO SEE THE IMMUNOLOGIST THERE.  I'M VERY HOPEFUL FOR THIS, AS IT SEEMS TO BE OUR LAST RESORT.  ANNIE HAS BEEN VERY SICK THE MAJORITY OF THE PAST FEW MONTHS AND SHE HASN BEEN GAINING ANY WEIGHT OR GROWING DUE TO THE FACT THAT SHE IS JUST FEELING SO UCKY ALL THE TIME.  SHE HASN'T GROWN AT ALL IN LENGTH SINCE HER 4 MONTH WELL BEBY CHECK AND SHE'S 7 MONTHS NOW.  IN 10 WEEKS SHE HAS DROPPED FROM THE 75% IN WEIGHT TO THE 20TH. 

I JUST PRAY THAT THEY IMMUNOLOGIST HAS SOMETHING WE CAN DO TO HELP HER FEEL BETTER.  THEY WON'T DO ANYTHING AT WALTER REED UNTIL SHE HAS BEEN WELL FOR 6 WEEKS WHICH IS NOT HAPPENING AT THIS POINT.  SO SHE HASN'T POOPEDON HER OWN IN 5 MONTHS AND WE ARE SUPPOSE TO WAIT UNTIL SHE IS HEALTHY FOR 6 WEEKS BEFORE THEY WILL PUT HER UNDER.  DOESN'T MAKE SENSE.  WE CAN'T FIND OUT WHAT IS WRONG UNTIL SHE IS HEALTHY?????  IT'S A NO BRAINER!

CHET'S STILL GONE.  ANOTHER 10 DAYS OR SO.  I CAN'T WAIT FOR HIM TO GET HOME SO HE CAN SHARE THE LOAD. 

life

well christmas went well.  The kids had area time opening gifts, and annie tore into things like she was a pro.  I haven't had much time to write because of the pure madness over here.

Chet is gone now though, so I'm sure I'll be back on more. We are taking Annie up to walter reed in dc on the 9th.  She will be there the until the 12th.  Chet of course is not coming.  He will be in SERE school.  At this point Christian, Annie, and I are all sick.  I haven't taken the kids to the doc yet because I am afraid they will cancel our trip up to dc.  I'll give it a couple days, but if none of us are getting better I'm going to have to do something. 

We are waing on a call from UNC for Annie.  Our ped was not at all impressed with the immunologist that we saw here, and either were we, so we are making the 2 hour drive to UNC.I hate driving here because I don't know where I am or where I'm going and that, to me, is one of the worst feelings.  I just hate it.

That's pretty much the update for now.  CHet's gone, I have two sick kids, same old same old...

CYSTIC FIBROSIS

prayer needed

IF YOU ARE READING THIS PLEASE TAKE A MOMENT TO PRAY FOR OUR LITTLE ANNIE.  TOMORROW A GI DOC AND A SURGEON ARE FLYING IN FROM WALTER REED TO NC TO SEE HER.  THEY THINK HER ANUS IS TOO SMALL AND THAT THEY MIGHT HAVE TO DO SURGERY.  THEY ARE ALSO SEEING HER BECAUSE BASICALLY SHE DOESN'T REALLY SEEM TO BE PRODUCING ANY POOP.  SHE GOES OVER 3 WEEKS BETWEEN BM'S AND EVEN THEN WE ARE HAVING TO GIVE HER SUPPOSITORIES TO MAKE HER GO AND WHEN SHE DOES GO IT ISN'T MUCH.  SOOOOO, PLEASE PRAY FOR OUR SWEET LIL BABY.

THANKS