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chasnfireflies
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Birthday: 9/20/1971
Gender: Female
Interests: Reading, people watching, raising my 4 kids, untrained psychoanalysis of myself and others lol Staying as free of pain as possible which is a real challenge with fibromyalgia syndrome. Chatting and people with a sense of humor!
Expertise: I am an expert at changing diapers of all sizes,and at listening to 4 kids complain all at the same time. I used to work in nursing and I am very good at providing hospice care and plan to go back to school when the kids are older to do social work with hospice patients and their families.
Occupation: Other
Industry: Other
Message: message meEmail: email me
Yahoo:  chasnfireflies
Member Since:
3/10/2006
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| Hi.
It seems there is so much to blog about and so little at the same time. I have been extremely moody lately. I hate it. I know mood swings are thyroid related and it feels like my hormones are completely out of whack. I am sick of hearing myself complain about the same shit over and over with no way to resolve it except wait.
The eye clinic called and canceled my re evaluation set for Oct 9th. They gave some lame reason and said I would get something in the mail about the rescheduled date. I give up. I may as well accept that I will be seeing this way for a very long time. F it!
We have some other very complicated issues going on with our 15 year old daughter. It's hard to explain without writing 3 pages of sensitive and private information. It involves a police investigation of a young man she was seeing earlier in the year. She will have no choice but to be interviewed in detail about something I am sure she would much rather forget than recount.
Looks like a good place to stop....my usual incessant whining. I should close with something good. Our financial situation has improved greatly. My husband is a very busy man but really liking his new job. I'll even add a smiley face.
~Ker
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| BirthdaySo, I turned 37 on Saturday.
We went to Red Lobster for some surf n turf.
When did that place get so damned expensive?
Sorry I have been so absent. Just not in much of a blogging mood lately, I guess.
I have good days and bad days. Just waiting for the appointment to see the peds surgeon again and maybe get a surgery date so I can SEE normally again!!
My self esteem has really taken a hit. But hey, we all need a slice of humble pie once in a while huh?
I have been walking and doing some muscle toning to help with body pain. It really helps.
Oh and I saw an endocrinologist. They are working to get my VERY low thyroid under control.
Hope you're all doing well.
~Ker
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| Never MindSo I get a call from the pediatric surgeon again.
They canceled my surgery. Apparently he spoke with another doctor who supposedly knows what HE is doing and they advised him to wait at least 6 months between the decompression surgery and the muscle surgery. Everything I have been told up until now was 6 weeks between. I am seriously losing my patience. NOT too pleased with all this. I am also scared that the other eye is beginning to swell. That could mean they will want to decompress the left eye first and wait 6 MORE months after that pain and misery! I go back in October and if the measurements are the same they will schedule surgery. Either way there isn't a damn thing I can do about any of it. Hurry up and wait.
Is this some kind of freaking joke????? *looking around for the candid camera* I am really losing faith that these surgeons have a CLUE wtf they are doing. It's scary.
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| Finally Got My Next Surgery Date :DFinally!! The eye doctor's office called me today to tell me the pediatric surgeon has set my surgery date and it was WAY sooner than I had expected. I go in on September 5th to have the eye muscle surgery which is only 9 days away. 10 and a wake up if you want to be technical. It feels like years that I have lived with my vision this way. I know this will be a difficult surgery to recover from, but I HAVE to get through it or I will never see normally again. I find myself excited and scared all at the same time. I just want this nightmare to end! Hubby said we need to find someone to take me because he doesn't think he can get the day off with his new job. That kind of bums me out.
I flew home to New York for Meaghan's funeral and it was beautiful. I could go on about it but I think I will leave it at that. I was able to say good bye and see my family and for that it was well worth the trip.
Hope you're all doing well.
Love,
~Ker
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