Where to Start?I went in for my gastro checkup last Friday and after waiting around for blood work and various other tests, my doc came back and said he was admitting me. Oh no you're not, I told him. I have stuff to do. Grandpa is on his way here, it's my daughter's birthday in three days ... can't I come back on Monday? He told me that he didn't know what would happen to me between then and Monday.
I knew it too. The walk to his office was hell. I felt like I was 80 years old and about to fall over at any second.
At any rate, I DID leave, but only to come home and pack a bag, explain to poor Grandpa (who luckily was here to take over daughter and Daisy care while Husband was at work) and wait for my daughter to get home from school so I could explain to her what was going on and that I'd be missing her birthday party and I really didn't know what to do about that. She took it with a grain of salt and gave me a hug and told me to come home better. Little shit, but at least she's resilient.
Husband drove me back later that evening and we spent about three hours waiting for a bed, which eventually turned out to be a 'cubicle' which was really weird. Felt like I was in solitary confinement. Four small walls, a really tiny bed and this weird kind of bubble in the door for people to look into. Good thing I'm a good sleeper. I spent a little over 24 hours there before I got a room. A room with a hacking, crying, gagging woman. At that same time I felt bad for her, I wanted to shout 'will ya shut the fuck up?' I'm mean.
And I swear Jennifer, if I'd have had your number or an internet connection, I would've been blatently begging you for some banana bread.
And not only that! This freakin' place has NO TV. NONE. Not even in the family rooms. OMG. Husband brought me my laptop and a crapload of movies so it wasn't too bad, but still! What's up with that???
Anyways, the highlights (I guess):
IV for rehydration 2 blood transfusions various IV packs containing vitamins and nutrients bone marrow extract (if anybody ever asks for your permission for that shit, run away screaming because that HURT) drugs, drugs, drugs talk of a liver byopsy but that has yet to happen as they're waiting for my 'levels' to flatten out and apparently things are looking good (cross your fingers)
And I guess that's about it. I've been sent home on 22 pills a day (including vitamins). I am no longer allowed to take my Crohn's meds (they screw with the liver) nor am I no longer able to have one single sip of alchol (same deal). (and that hurts)
I feel stronger, which is good. I think that's the blood transfusion. Apparently I wasn't producing enough to make marrow, if that makes any sense. I've spoken to so many doctors, it's all a jumble in my head. But it does make sense to me in the way I was shuffling along like an old woman and basically having to pull myself up the stairs with the railing.
Anyways, the past few months have been hell, and all I want is my life back. I actually puttered around the house yesterday, doing this and that and it felt good. Sat outside for awhile.
On a final note, here's what NOT to do when hooked up to an IV and woken up in the middle of the night with the mad urge to pee from all of the fluids they're pumping into you:
- Do NOT flail out of bed in a mad rush for the bathroom, get yourself caught up in the wires of your IV, fall flat on your face and smash your forehead off of the floor and proceed to just lie there and piss yourself on the floor. Not cool.
- Do NOT actually make it out of your bed, halfway across the room, before you realize you're going to take a dump any second, so you speed it up and in the process rip your IV line out without even realizing it, spraying blood all over your ward and freaking out the nurse. Not cool either.
Fun times.
I have another appointment in two weeks  |