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marilynn07
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Name: Marilynn
Country: United States
State: Tennessee
Interests: I like the outdoors a lot. The most favorite outdoor thing I like to do is canoe. But, I don't own a canoe. So, I wish a lot. The other thing I like to do is watch birds and hike the local trails. Fortunately, the area of Tennessee I live in has rivers and trails a plenty.
Expertise: I am a teacher of academically challenged students. I have a Master's degree in Curriculum and Instruction with an emphasis on special education. I am a certified teacher of the visually impaired. I am proficient in literary braille as well as Nemeth Code
Occupation: Education/training--I teach vi
Industry: Education/Research
Message: message me
Website: visit my website
Member Since:
1/6/2001
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| It's been a yearMy last entry was in March of 2006. Things in my life were upside down. I took my hubby to FL to an extended stay hotel which became our home for 6 months. We spent 3 months during the liver evaluation doing every test known to man and some they made up just for him I think.
In July early one morning, the phone rang. Hi had the opportunity for a transplant. He took it. The transplant surgery began at 10:00 p.m. and lasted until 3:00 a.m. between July 8 and 9. So, he and I share a birthday of sorts. We'll celebrate together anyway. His transplant surgery was successful with no complications afterward. He was discharged to a regular room immediately post-op. Wow!
After that we spent a week in the hospital going to classes on how to take care of the new organ and help it stick. It was very intense. My daughter Rose was with us throughout the ordeal.
I must say I was extremely disappointed with my husband's family as none of them bothered to show up even for a visit. One of his sisters lived in FL at the time. Sad story...but extremely dramatic family with lots of issues that they don't want to resolve or let go.
It's been 1 year since his surgery. So, my perspectives on lots of things has changed. I'm happy to hang out with my family doing nothing! I'm also happy to spend time with hubby. I do wish he would get out of his current funk and try searching for work. It's been at least 14 years since he's pulled in a check. It would certainly help his attitude to be a wage earner.
Finally, I started a crochet group at my church. It's been going well, but there are always hiccups. I am faced with one now. I've been given a box of hexagonal motifs to finish a bedspread for a friend...but no pattern...I'm flummoxed. I'll post pictures of it, and if anyone has any ideas, please send to me.
That's all for now.
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| Jax FLLife is evermore challenging as we continue the evaluation process for the liver transplant.
Hi is quite pouncy at the present, but he doesn't realize how he sounds...that's the beauty of being the speaker. I hate it when I feel he is talking to me like I'm a little kid or not real bright. But, he feels that i talk to him the same way. Let's just attribute it all to stress shall we.
We're living in a fairly nice extended stay hotel, but it's tight space for us. So, there are the occasional cat-fights.
I really want him to get a new liver soon. I miss his usually happy-go-lucky self. He really used to be a pleasant person. This illness has made him old, crotchety, and ill-tempered. | | |
| SNOWIt snowed. Got a much needed break from school. Yippie! I almost went sledding, but skipped. I watched the kids slide. We only got 2" and I didn't need to bust my butt on the ground.
It was fun...breathing in the icy air. Listening to the youngsters yip and holler. It made life bearable once more.
I saw 2 redtail hawks near by and had to find where they were perched. I love those predatory birds. There is some deep affinity between them and me. | | |
| Three reasons I love being a vision specialist.
1. I get to meet kids who are resilient.
2. There are people in the world who have more problems than I do.
3. I get to let regular ed teachers look through the vision problem eye kit that I bring with me to my meetings.
Today I had a preliminary meeting with a parent and her daughter. The daughter already has a CD out. Imagine that. It was a tearful meeting because the child's vision seems to be deteriorating. I try to support a child in regular public school with the tools and necessary items that will help that child access print media, develop social skills, acquire vocational skills, and support the skills of daily living. She was avoiding lunch because she was afraid she would trip and fall with a tray in her hands and the others would laugh at her. The attitude of the regular teachers is sometimes appalling though. They act like the child is "faking" it in order to get a free ride or attention or some kind of extra stuff
Today is Rose's birthday!
She's the one in the middle with the orange life vest on. Today she is 11 years old. I got her a sequinned purse. We'll see how long that lasts.
We're still waiting to hear from the transplant center. The doc here in our little town faxed the information down to the transplant center. Now, we're in hold mode! The wait is very nearly unbearable!
Hi is doing ok today. Yesterday he was moody and snappish. Moody...like a little kid on a bad day... Snappish like an old woman who's not the center of attention! It's the ammonia in his blood that makes him act like that. | | |
| Hi there,
Things are getting interesting. I got the packet of information from the Liver Foundation. More paperwork to fill out. However, looks like we might be able to make this work to get money. I hate this. I'm too Southern (read proud) to ask for money. I need a war chest full of cash. I've been reading blogs from other transplant receipients. Over $1500 per month for hotel stays. YIKES! Plus money for food, gas, travel expenses. And, that's not counting medical bills.
However, I have faith in my God who will supply everything I need. I'm finding out who my friends are. And some who are coming out from the woodwork are amazing me.
Please pray for us. We need it. | | |
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