Three reasons I love being a vision specialist.
1. I get to meet kids who are resilient.
2. There are people in the world who have more problems than I do.
3. I get to let regular ed teachers look through the vision problem eye kit that I bring with me to my meetings.
Today I had a preliminary meeting with a parent and her daughter. The daughter already has a CD out. Imagine that. It was a tearful meeting because the child's vision seems to be deteriorating. I try to support a child in regular public school with the tools and necessary items that will help that child access print media, develop social skills, acquire vocational skills, and support the skills of daily living. She was avoiding lunch because she was afraid she would trip and fall with a tray in her hands and the others would laugh at her. The attitude of the regular teachers is sometimes appalling though. They act like the child is "faking" it in order to get a free ride or attention or some kind of extra stuff
Today is Rose's birthday!
She's the one in the middle with the orange life vest on. Today she is 11 years old. I got her a sequinned purse. We'll see how long that lasts.
We're still waiting to hear from the transplant center. The doc here in our little town faxed the information down to the transplant center. Now, we're in hold mode! The wait is very nearly unbearable!
Hi is doing ok today. Yesterday he was moody and snappish. Moody...like a little kid on a bad day... Snappish like an old woman who's not the center of attention! It's the ammonia in his blood that makes him act like that. | 
