Copyright Tiffany Fitch 2003-2008 All entries but the most recent are protected. Feel free to email if you would like to read other posts. :) jfp_blog_button
About this Entry
Posted by: neuroticfitchmom

Visit neuroticfitchmom's Xanga Site

Original: 5/2/2007 1:43 PM
Comments: 286
eProps: 545

Read Comments
Post a Comment
Back to Your Xanga Site

Tags


Who gave the eProps?
2 eProps!2 eProps! 2 eProps from:
x_OverYou_x
pitter_pat
goddessfourwinds
mommers
mommyheaver
XINERGY
shaunamama
thenarrator
jackie004
madhousewife
momofjenmatt
jassmine
JennyG
Rant_This
ellen234
LoserYesYouAre
Anothermadhousewife
suzyQ_darnit
trixiebelden
Yunsu
Leonidas
butterflybaby36
selkie_upsilon
Orlando
kissthewitch
tarzansgurrrl
MarkLupton
Tom
anonymouswish
brookee
myloves07
waiuu
awth44
mom_da_bomb_14
Building_A_Mystery
Uryra919
garlicky
stephcoolios
squeakysoul
neverstopstriving
eavanoconners
Two_Sense
yourblackdog
andychuu
SpiderAwry
DirtRoadBlues
RaSuga
White_Slipper
wPraest
Levanna
my_manic_fix
nattiewrites
ItzaRoos
xxsynderellaxx2002
KoffeeKween
sirtechlocke
carpuzzi_kiki
jaxgirl
the_boodoll
her_record_skips
elizajane202
queenie
i_love_u_get_away_from_me
luvtotravel
penndawg21
Kadoosh
seedsower
ive_kk_fag
whisperingsea
spinner_mom
CheriM
middlechildrenofhistory
charmedone614
no_4tun8_son
tusharart
drowningphoenix825
TempBoogie
Halfy79
Dewdropsonthegrass
Curlyquilter
BNVDance
PunkDiva
Serenity_BEC_SilverWings
krIstIn10185
raspootin
flaminredhead
JazzSaxKitten
Trainside_Levitating
JoyA41076
pandasp0ts
SideshowAnnie
RazorbladeDiva
blonde_supermodel
starryeyes939
b0gdana
harusame
Bralor
x_broken_one_x
silent_tears_canonlybe_felt
MrDaveBoi
be_the_rain
Robert_Ford
anasazi018
transvestite_rabbit
sweetanonymity
VW_Bus_Kid
MicahMurray
YellowRose_Scarlet
ilovestlbaseball
xX5personalitiesXx
stuperduper
buddy71
lovely_sk8ter_900
jacobithegreat
HeLovesMe32
luv_u1234
Andrew1221werdnA
Mandrake
SapphireEyesMochaCurls
dreamloverchique
ColoringWithBrokenCrayons
Paizleygrl
daisygrrl
elgaberino
iconlluvr
two_blue_skies
Shes_Not_Me
once_upon_a_time_in_neverland
Yoru_Kendo
brokensoul0607
somethinglikesoma
wolvenchic
rambunxiouz
sanichiwa
ThatGilbertGirl
LadyLibellule
Erika_Steele
unicor_2010
Worlds_Greatest_Mum
courtneyy5
SquallFire
JacquelineLovett_FG
everything_back_but_you
amelie_daigle
Alexof180
cheeselover3000
heyELI__x3
rjadtv
simplicit_complications
Cho_Seung_Hui
pseudoecho
Eponinestears
ginlee
HomerTheBrave
pattierwr
Beauty_In_A_Single_Image
brandi_shawn
Abigailigator
buyit
sunshineupurass
Foxy_Lady_8
delaSEOUL
Carol_1
darwin54
Jamericuban_Princess
annakristine270
Just_Not_Human
miss_ga_85
daphness
jacksbrokenheart
truestconfessions
FixingtoLive
jeny63
shes_come_undone_1
IHearTheOcean
absolutlime
princeton_doLL
Fayts_Angel
twoberry
guitaraddictdan
GoRGEoUSxBREAKDoWN
quiltnmomi
elfqueen
workel3915
me_jules
rediscoverbeauty
kissmequikly
LittleMissCantBeWrongEver
Arizonagirl18
MockGod
not_me_when_iDREAM
Jeff_Goins
Moonlit_Lass
theonewhoyoudontknow
thuhwickedclown
trunthepaige
HalfaCent
twiddle38
jill_again
sally_shoptaw
akandjievo
kristen_chaos_SCENEx
eternal_serenity
KomodoScale
kaeliesays_hello
hchamberlin02
FaireLight
wildstream
bda16981
mommainlove
Adwa_Saki
peace_love_gymnastics
maria_d_thinksandinks
kaiserchiefsFan
clarinet_player_06
CFairy
AddingInsultToInjury
freeposter
HEARTUETERNITY
Gungaboy
NaivivTheRed
kamomlisa
black_lie
bell5262000
BredSngALong
DepthofSoul
sugar_lover3773
RoseYRoseY
BoiseSmurf
dairyerr
deborahkuo26
Lindaleore
cltgrace
al86
smallme2
clinicallyamess
HiccupingKittens
JessimecaB
ShadowsFallToo
olive____juice
adriene
metta_karuna
youngvan
lil_teen_azn_grl
jieun_x
MizconstruedJa
who_is_toby
DDDYGRLS4
hyper_U18
lostdreamer13
biggyal
chentony
singing_on
katers578
iLyd
itsmethelion
SCDK
Crazymomma
InGodsFootprints
justbygrace
howlerweb
missugs_writing_page
guitarbasskeyboard
tlck2000
invinciblebeckers
kaytee9008
CellMate66
Lenore_Happenstance
lili
purcells
Sandcastles
jada_marnew

1 eProp 1 eProp from:
L0well


Wednesday, May 02, 2007
 
Currently Reading
A Confederacy of Dunces (Evergreen Book)
By John Kennedy Toole
see related

Normal

 "Imagine," she said, taking a seat next to me on the rickety playground bench.  "You've decided to take a trip to New York City.  You've packed your high heels and your best clothes and you're planning to hit the town and see all the shows.  But you get off the plane and you're in Switzerland.  It's a little colder, a little slower, but still nice.  Just different.  It's the same with these kids."

"I just wanted him to be normal," I replied, looking up to watch him and the other Fifth Graders running wildly over the wooden structures, her class in the mix.

"Whatever that means," she said.

I thought I'd reached the point where I wanted to know, even if I didn't like the answer.  I'd put it off for years, even though some part of me knew he was different from the start.

He spoke young, Daddy and Mama followed by thermostat and full sentences before he was one.  At two he was flapping, little arms going like butterfly wings, close to his sides, lips buzzing.  I thought he was pretending to fly.  Until I noticed it more and more, when he was bored, when he was tired, when he was mad, when he was joyous.

"Are you an airplane or a helicopter," I asked him.

"Neither Mama."

At age four, his eyes huge and blue, never really looked at me.  He gazed somewhere behind my head or turned his face entirely away. 

"Don't you like Mama's face?" I teased him.  "Am I that ugly?"

"You're beautiful Mama.  I'd never think that," he replied, still not seeing me.

And then he went to school.  Kindergarten, right across the street with a 1st year teacher.  He brought home yellows and reds everyday and she made sure to meet me in the parent pickup line to list his transgressions.

"He's the sweetest thing but he goes on and on about Toy Story when I'm trying to teach.  It's distracting the class."

Toy Story, which played constantly on one of the TVs at the house and had for almost two years.  We had Toy Story bedding, dishes, toothpaste, clothes and toys.  Just like the Thomas the Tank Engine phase we'd gone through two years before.  I felt like I knew George Carlin and Buzz Lightyear personally.

"He's making these noises, humming and he's having meltdowns over the smallest things.  But he's so smart."

"I'll talk to him," I'd assure her going home to cry.  Beating myself up for not enrolling him in preschool.  Not sure what the answer was myself.

Until 2nd grade, when a teacher's assistant pointed me to a website, that described my boy to a tee.

"He reminds me of my sister's boy," she said, handing me the slip of paper with a link.

But I still hesitated to make it official, to put what I saw as a stigma around his neck.  Instead, I worked hard to give him coping techniques that didn't involve hour long sobs, to find out what set him off and teach him to cope.

In 4th grade, we'd meet an angel in pretty heels, his teacher, who two months in had him looking me in the eyes.  Somehow she knew, but didn't say, rules and regulations keeping her from expressing her opinion.

"I taught him," she explained when I came to her with thankful tears.  "I draw his eyes in with my finger and now he remembers."

He still had to think about it, eyes occasionally darting off, but it was a start.  His meltdowns stopped other than a growl of aggravation every now and then, over intense stress.  And I relaxed for awhile, until this year, 5th Grade, Junior high rapidly approaching. 

I made an appointment.

4 hours later, leaving the office, Asperger's Syndrome, written down in the doctor's chicken scratch, my heart tearing apart. 

"It's like teaching any other child math or reading," she told me as a tear rolled down my cheek.  "With a little help, he'll be fine."

He may never be "normal", who really is anyway?  But watching my precious boy, sweaty face beaming at me across the sandy playground, I knew I'd pick Switzerland over New York, any day....


 Posted 5/2/2007 1:43 PM - 286 comments

Give eProps or Post a Comment

286 Comments

browse comments: next › | last »


Visit x_OverYou_x's Xanga Site!
whats normal anyways? who wants to be normal. he sounds like a sweetheart regardless of his 'diagnosis', bc thats all it is.
Posted 4/29/2007 2:20 PM by x_OverYou_x - reply

Visit pitter_pat's Xanga Site!
It must be so hard as a mother to accept that your child is going to have difficulties in life, in some way that sets him apart. Luckily, he's a kid growing up in an age where people are increasingly familiar with Asperger's, are more accepting of differences, and can teach him skills to interact with people not like him (just like the angel in heels). He's a unique and lucky boy.
Posted 4/29/2007 2:31 PM by pitter_pat - reply

Visit goddessfourwinds's Xanga Site!

I can easily relate to this...although I didn't get a "real" diagnosis until Dustin was in Jr. High (before that, it was always just ADHD). I'm still not exactly sure it's "just" bipolar. I read something about "Pragmatic Symantic Disorder" on someone else's site, and that comes pretty close to discribing how my kid thinks...or doesn't think, as the name suggests. (Having Indigo/Crystal children with "diagnoses" doesn't help them cope in restrictive social settings...like school...anyway.) I don't like giving Dustin labels (and I haven't told him this latest tidbit...), but if it can give me a better understanding of him and tools to help him, I'll take whatever I can find. PSD is a lot better than the ODD label the shrinks gave him. I think most of today's children have something. Whether caused by the ubiquitous pollution (as my mother believes), mercury in flu shots or the ascension information that is activating extra strands of our DNA (!?!), our children's health and well-being can only be helped with whatever knowledge we can find that aids us in teaching them how to cope.

It sucks, yes. And as mothers we have a tendency to place the blame on ourselves. (I know I did...for the looongest time.) Blame-placing doesn't do anything but take our focus away what we need to be doing.  Most of the time the only thing I can think to do is arm myself with the best knowledge and intuitive resources I can find. (I trust myself more than I trust many doctors, when it comes to my kid.) I believe my child chose me to be his mother. He obviously knew I'd be the best at getting him the help he needs in his personal journey.

This is no different from having a child who has diabeties or a heart problem. It's physical in nature, although it manifests in behavior. We can do this.

I love you, Tiff...GFW

Posted 4/29/2007 2:54 PM by goddessfourwinds Xanga Lifetime Member - reply

Visit mommers's Xanga Site!
define normal.
Is this your boy?
You have been blessed.
Posted 4/29/2007 3:05 PM by mommers Xanga True Member - reply

Visit mommyheaver's Xanga Site!
(((HUGS)))  This is a truly poignant piece.
Posted 4/29/2007 3:17 PM by mommyheaver - reply

Visit XINERGY's Xanga Site!
Profoundly human.
Posted 4/29/2007 3:46 PM by XINERGY Xanga True Member Xanga Lifetime Member - reply

Visit shaunamama's Xanga Site!
What a wonderful piece, Tiff.  This is just heart-wrenching.  You always know how to make my heart melt. Hugs to you all.
Posted 4/29/2007 4:16 PM by shaunamama - reply

Visit thenarrator's Xanga Site!
This is wonderfully written. Describes so much. But I just want to add, the US needs to get past the idea of medical diagnosis for disability, and start creating Universal Design schools that actually educate (not test) all kids. Italy (Italy!) leads the way, but the rest of Europe (except Germany) is heading that way. The US though, partially because it lacks a real health care system, partially because it wants to treat manufacturing as a factory process that can't work well with "defective inputs," is way behind - in fact, it is going in the wrong direction.

What does universal design mean? I'll give you a classic example. If someone cannot stand all day they cannot be a cashier in the US, or they must fight for "an accommodation" and a stool. In Ireland every cashier sits on a chair. You don't even need legs to do the job just like anyone else. That changes a "disability" into a much-less-important "human difference."

For those interested in this, I have lots of links at my SpeEdChange blog.
Posted 4/29/2007 4:21 PM by thenarrator - reply

Visit jackie004's Xanga Site!

wow, asberger's syndrome.. so amazing.. you can get through it miss tiffany... just because he is diagnoised with being spectular - doesn't make him less of a person. People and children with autism are extraordinary people :)

Posted 4/29/2007 4:26 PM by jackie004 - reply

Visit madhousewife's Xanga Site!

Sometimes I think the hardest part is anticipating the struggle.  All kids go through phases of difficulty, but in my more cynical moods I look at my daughter and think, "Okay, this will end, but something similar is just going to take its place."  And then I just get depressed.  My husband is better at stepping back and seeing where progress has been made, and hence he is an optimist. 

And we all know what "normal" is.  It's whatever we (or our kids) aren't.  ;)

Posted 4/29/2007 5:41 PM by online now madhousewife Xanga True Member - reply

Visit momofjenmatt's Xanga Site!
great story!
Posted 4/29/2007 7:06 PM by momofjenmatt Xanga True Member Xanga Lifetime Member - reply

Visit jassmine's Xanga Site!
So sad but so well written. It hurts a mothers heart to feel her child will be hurt for their differences. Judi
Posted 4/29/2007 7:21 PM by jassmine Xanga True Member - reply

Visit JennyG's Xanga Site!
I had no idea you were dealing with this all this time. I wish I could have helped you in some way.
This will be good for him... he will find his way and the label will help him, not hinder him. I pray for you all... it's hard.
Posted 4/29/2007 7:26 PM by JennyG Xanga True Member Xanga Lifetime Member - reply

Visit Rant_This's Xanga Site!

Wonderfully written.  And I think youve known for a long time, and having it be verified shouldnt change anything.  He will grow up as normal as everyone else, because as everyone has pointed out, what is normal anyway? 

Posted 4/29/2007 7:50 PM by Rant_This - reply

Visit ellen234's Xanga Site!
Working in the Silicon Valley, I think I deal daily with "high functioning Asperger's" folks. Think computer geek. Think highly intelligent folks who don't always communicate well or relate well, but do wonderful things. The autism levels here are extreme. One article I read said "Take a bunch of Aspergers and have them mate and what do you get?" I would suspect at least one of mine is on a different scale, anxiety related. With a bit of obsessive compulsive thrown in. Different issues, but still not "just normal." Maybe there is no such thing. Just know there's a place for him. It may not be what you'd envisioned. But he'll find a way to place. He sounds sweet. But it's so hard until they find that place.
Posted 4/29/2007 8:47 PM by ellen234 - reply

Visit LoserYesYouAre's Xanga Site!
Likes other's have said, "what is normal" - define normal.  Bless your son's teacher, for teaching him how to look at you in your eyes.  Bless you too Tiff, you are a wonderful mother.
Posted 4/29/2007 9:08 PM by LoserYesYouAre Xanga True Member Xanga Lifetime Member - reply

Visit Anothermadhousewife's Xanga Site!

My little sister wasn't diagnosed with Asperger's until middle school. 

This is really touching, Tiff. . .a beautiful piece of writing. :)

Posted 4/29/2007 9:25 PM by Anothermadhousewife - reply

Visit thenarrator's Xanga Site!
Just wanted to share a few more links:

For "Aspie" adults - an interesting survival guide.
Universal Design Resources
Scotland's Asperger's Inclusive site
And The Curious Incident of the Dog in the Night-Time. Mark Haddon's absolutely brilliant novel with a teen Asperger's narrator.
Posted 4/29/2007 9:40 PM by thenarrator - reply

Visit suzyQ_darnit's Xanga Site!

Wonderful perspective on a heartbreaking subject.

It seems like this is becoming more of a known factor in recent years.  So many children are diagnosed with  this!  I'm sure you will find lots of company, and lots of knowledgable support here.

Posted 4/30/2007 12:00 AM by suzyQ_darnit Xanga True Member - reply

Visit trixiebelden's Xanga Site!
I've been doing a ton of Asperger's research. It's very likely my son will be diagnosed as well. It's a really scary thing. You do want them to be just "normal" and at the same time, I've known in my heart since he was tiny that something just isn't right. As a mama, you'll do whatever it takes to get help. How old is your son?
Posted 4/30/2007 1:02 AM by trixiebelden Xanga True Member - reply

Visit Yunsu's Xanga Site!

Hope I didn't sound too harsh (on my entry?), I was just "trying" to be amusing.  A little weirdness is fine.  BTW, still trying 2 figure out how many kids you have. 4?  And as for entries like these, were they written by you? Tho' it's not about you. Okay, jus' tryin' not 2 confuse things!

Posted 4/30/2007 1:07 AM by Yunsu - reply

Visit Leonidas's Xanga Site!
normal is such a flawed concept and you show a peek into that here...
Posted 4/30/2007 2:24 AM by Leonidas Xanga True Member Xanga Lifetime Member - reply

Visit butterflybaby36's Xanga Site!
this was beautifully written.  i felt like crying with you.
Posted 4/30/2007 5:40 AM by butterflybaby36 Xanga True Member - reply

Visit Orlando's Xanga Site!
Beautifully written. I don't know what this syndrome is but now i'm going to google it and learn all about it.
peace.
Posted 4/30/2007 5:51 AM by Orlando Xanga True Member - reply

Visit kissthewitch's Xanga Site!
Wow. This is an amazing post.
Posted 4/30/2007 6:41 AM by kissthewitch - reply

browse comments: next › | last »


Choose Identity
 
Give eProps (?)
Post a Comment
Add Link | Preview HTML comment help 
Profile Pic:
Default  |  Choose »  (?)



Back to neuroticfitchmom's Xanga Site!
Note: your comment will appear in neuroticfitchmom's local time zone:
GMT -06:00 (Central Standard - US, Canada)

< ? Blogging Mommies # >

< ? Redhead Blogs # >

Got'em Xanga Logger / Tracker