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| WE'RE HOME!!!!
His chest tube came out and the follow up chest xray showed that he's doing fine! He has some fluid in his chest, but we're going to do another xray on Thursday and go see Dr. Cosentino that afternoon.
I'm feeling much better being home. Lots to do and catch up on.
Pat and I are still just tickled at this day being here. He keeps saying "we're home, can you believe it?". As we were pulling away from the pediatric unit, we drove past the Obstetrix office which is where this whole journey started over a year ago. It was March 22nd that we found out last year. It was a beautiful picture of "driving away" from this whole story and where it began.
I'll upload some pictures for you this week.
Praising the Lord in all things!
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| We might be able to go home tomorrow night!!! He's doing great on water seal. They don't think he has an air leak. Yesterday's xray is improved. They think his lower lobe is just having a hard time filling in the space but will eventually do just fine over time. They got to disconnect him from the wall suction and we were able to take him around the hospital in a wagon this morning. It was great. Karina's here now and is playing with Kemuel. I missed the Addleman's as they tried to stop by (Argh!) I was sooo upset that I missed them. I was out cold. Hope I wasn't snoring too loud when she peeked in on me. (Ha!) On my way to do a quick walk around the hospital. It's probably a solid 15 minute walk once around the floors of TMC. For those of you who aren't from Tucson, TMC is one of the largest one floor hospital's in the country if not the largest. They built it as one floor as to not block the views of the beautiful Catalina mountains behind it. Pray for Kemuel when they take his tube out tomorrow. Perhaps my next post will be from home! YAY!!! | | |
| No changes as of yet. His chest tube is stil to suction. His demeanor is completely normal. He's as busy as ever and boy do my arms hurt from trying to keep him still. Kemuel started walking on Mother's Day and wants to do so now. Only thing is that he gets tangled up in his tubes. So, I can't take my hands off him at all. It's funny 'cause that tube has almost become an accessory a this point. He had an xray this morning and we're still waiting for Dr. C to do her rounds. It's Sunday though and I'm sure the routines are different. The resident came by and shared with me that there's a chance they may allow him to go home with a small pneumothorax. Being that the tumor took up 2/3 of his chest, it's no wonder that the remaining lobe of the left lung can't reach all the way up to the top of his lung cavity yet. It's been squished for months. So, their goal is to allow it to expand as much as it can and then it may takes months to fill in the rest of the way. Their only precaution is to make sure that there's not an air leak inside somehow. If there were, they may have to reopen him to fix it.  She's pretty optimistic that it's not that though. But we are monitoring him to rule that possiblity out. I've read online that air leaks can be a complication of a lobectomy. Again, we're praying that it's not. I'll try and post later after the surgeon reads the xray. However, the computer room may be locked later due to the holiday. Please continue to pray over this air pocket in his chest. For wisdom as to what it is. Also, with the prolonged chest tube placement: that infection doesn't set in. 
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| Kemuel is one tough little boy. He's acting as if he doesn't even have a tube in. Supposedly it's very painful but don't tell him that! We just keep him on his pain medicine every 4 hours just incase. My sweet Kemuel will be in here another few days. His xray shows that his lung is still partly full of air. Dr. C thinks that perhaps his residual lung is having a tough time filling in the space. So, he'll need to be on suction a bit linger before we try the water seal again. I'm so grateful to be spending time with Kemuel. I have to use the call light often to call for help as I can't take my hands off Kemuel at all. He's very fidgety and could very easily dislodge his tube, so the gals here have been very helpful in holding him so I can use the bathroom and such. Pat's trying to manage things at home and is making many trips back and forth. I'm so grateful for him. Thank you to all of you who've brought me yummy food to try and keep me as healthy as possible. Nutrition is kind of on the low part of my list of priorities, so it helps when you all have had food available for me so that I don't have to think about it. THANK YOU!!! Kyra's my designated helper today. She's very excited to get to stay with Mommy and Kemuel. 
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