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Original: 4/29/2008 10:08 PM
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Tuesday, April 29, 2008
 

Mental Health Disparities

How come if I broke a leg, I would get more attention for it than for losing my sister? Not just one sister, but two. How come if I was diagnosed with cancer then I would be able to "Make a Wish" and go to Disney World but not if I was diagnosed with chronic depression, bipolar disorder, or any other debilitating mental illness? Just like cancer patients risk death, so do patients with severe mental illnesses that cause suicidal ideation. My friend who had cancer was in and out of the hospital a lot, but he didn't have to stay in inpatient care for weeks at a time. The longest he was in the hospital overnight was for four days at most. Yet, here I am, I spent over two weeks in a hospital because my illness made me feel so low that it led me to attempt suicide and my near-death experience was barely acknowledged. Not only did I spend over two weeks in a hospital, I have been making frequent visits to a doctor just like he did. I have to see my psychiatrist every week, except I have been seeing this doctor every week for over two years and more to come, yet my suffering is paid little attention.

 

I nearly cried when this friend of mine was telling me today about how our same teachers that we had in middle school brought him over $200 worth of stuff (giftcards, games, food) when he was diagnosed with cancer, plus a thick pile of get-well cards from all of our teachers. When my sister died in 7th grade, none of these same teachers acknowledged it. No sorrys were said and no condolences were given. In 9th grade, the year before my friend was diagnosed with cancer, my second sister died. Again, I was offered zero comfort or sympathy. I am deeply hurt by this. This upsetting revelation that I learned of today is what inspired me to write this lengthy piece.

 

My life has been severely impaired by my mental illness. I have suffered so much. I know what it feels like to hit rock bottom. I know how painful depression can be, and how alone it makes you feel. I know the suffocating restraints a mental illness can curse you with.

 

I speak on the behalf of all others suffering from a mental illness. The disparities are despicable. They are sickening. Society turns its backs on the mentally ill and opens its arms wide for the “poor,” “helpless” people who are physically ill. Aren’t we just as helpless? I don’t want to be restrained by my mental illness! It’s not my fault that God chose me to suffer! Does anybody hear me? Or is society deaf to the helpless pleas of the mentally ill? I don’t want to be this way, but it doesn’t matter what I want because the pain I feel is in my internal self. My scarred, torn, broken heart doesn’t seem to show like the surgery scars show on a physically ill patient and that is where the line is drawn, between the seen and unseen, the mentally ill and the physically ill. If you can’t see it, then society says it’s not there. My illness cannot be eye witnessed and because of this, disparities as despicably unjust as these will choose the mentally ill’s fate: whether or not large sums of money will be put forth for research regarding causes or treatments for mental illnesses, whether or not insurance companies will pay for psychotherapy or hospitalization in a psychward, whether or not laws will forgive the mentally ill for their disabilities, etc.

 

Because my illness is a battle against myself and no one else can see the war happening within my heart and my head, the blind eyes of society dismiss such an illness to be unworthy of love, attention, and care. I don’t want this! I need help! I can’t fight my inner demons alone; I need everything that a physically ill patient needs to get better! My heart won’t mend without stitches of love to help sew it back together. My mind won’t calm without the soothing words of a friend. My eyes will never see the sunshine without someone to help clear away the clouds. My problems will never cease without much needed support nor would a physically ill person’s.

 

A few months ago (February I believe) I wrote a letter to the Make a Wish foundation that grants physically ill children one wish, whether that be a trip to Disney World or a new bike, the foundation will follow through to give the child his/her wish. I suggested considering expanding their generous deeds to not only the physically ill, but the mentally ill too.

             

Make a Wish,

             

            First of all, I would like to say that I think this is a wonderful foundation that has brightened the lives of many ill children. A friend of mine was diagnosed with Hodgkin’s disease last year and went to Disney World to fulfill his wish. It brightened his life after months of darkness.

 

            I understand that this foundation is meant for children with medical illnesses that are life-threatening, but what about those with mental illnesses? Mental illnesses can be just as emotionally damaging and life-threatening as medical illnesses. Just like children diagnosed with a possibly fatal medical illness such as cancer, children diagnosed with a mental illness have no control over the onset of the illness. It is not a personality flaw, but a real illness that heavily impacts how the child functions. I have experienced that impact first hand.

 

            I have three sisters. Two died by suicide. My deceased sisters both had life-threatening mental illnesses that ended in tragedy. Their mental illnesses led to suicide. They felt a pain so intense, so deep, that they felt the need to take their own lives, but it wasn’t their lives that they wanted to end. It was the pain they wanted to end, and they saw no other way out. So my question is this: what is worse? An emotional pain so deep that it leads one to take their own life? Or a physical pain? Still, I do not know the answer.

 

            Currently I am 16 years old. I was 13 years old when my 15 year old sister took her life. She was severely depressed. I know that if she was given an opportunity to make a wish, her sadness would be set aside, and she would fulfill her wish with pure delight and happiness. She dreamed of traveling the world--to Spain, Italy, Germany, Peru, France, everywhere!

 

            When she was happy, it truly made me happy to see her enjoy life like every child should. To see her smile and laugh and to full heartedly enjoy life for that one moment was always a liberating experience. The hardest thing to do is to watch your loved one seem to fade away into a darkness and not know how to bring them back, but I think a wish granted would have that person enthralled in happiness. It could help lead them out of the darkness that engulfs them. Not only would such an experience be touching for the child, but it would significantly touch the lives of each and every one of the family members whom struggle to cope with the child’s illness.

 

            The impact of having a mentally ill child in the family causes a constant struggle. A day in Disney Land, a walk along the beaches of Hawaii, a meeting with a local celebrity, a new bike, could make a difference in the life of an innocent, mentally ill child. Such a wish could provide a child plagued by sadness with a pleasurable feeling so grandiose and big that it has been months, maybe even years, since the child has felt that feeling of sincere happiness.

 

            Again, I want to express my gratitude to the people that have helped make the wishes of ill children come true. I know being able to make a wish would be greatly appreciated and cherished by children suffering from mental illnesses like depression or bipolar disorder. It would take away their pain for the moment that they are experiencing their wish. It would give them a break from the life they constantly struggle with. It would give them hope.

 

            I hope that this message is taken into serious consideration because I know that this philanthropic foundation could make a difference in the lives of children suffering from a mental illness. So please, help lead these children away from the mental illnesses that they battle everyday into the right direction, and give them the wish that could change their lives.

 

Thank you!

With deepest regards,

withouidentity911

 

Here you can write a letter to the Make a Wish foundation too! http://www.wish.org/about/contact Click general inquiries. It might be even better if you both emailed and sent it through snailmail. Please write a letter! Help make a difference. We have to start small and build to make a difference, and this is a good place to start!

 Posted 4/29/2008 10:08 PM - 594 comments

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Visit write4liberation's Xanga Site!
you have experienced pain i cant even imagine. ive been reading your blog for a while and i know about you and your two sisters and ive always wanted to tell you how strong i thought you were and how i hope you can hang in there.

i think one of the reasons people dont show the same sympathy for people going through a mental illness is that they dont know. there arnt any painfully obvious signs and people dont usually go around parading the fact that they have a mental illness.

i also think that people dont have the same reaction is because everyone has experienced bouts of these illnesses. everyones been depressed and everyones probably felt a little crazy. im not saying their equal pains, but i think it might be harder for some people to understand these illnesses as being chronic and effecting ones daily life for an extended period of time. i think alot of people see these pains that you and others experiencing as ephemeral as opposed to permanent.

im really glad i read this because ill be honest with you, i had no idea people with mental illnesses felt this way. i didnt know that they felt like it was unfair that those with physical illnesses got all this care and attention and they got nothing.

this will definately change how i treat people i know who are dealing with things like this, and thats a small step, but i guess at this point, im not really sure what society should do to address this. ill pray for you- i dont know whether that sounds appealing or not, but it sounds like those suffering from mental illnesses need our prayers just as much as those suffering physically.
Posted 4/30/2008 8:06 PM by write4liberation - reply

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The mentally ill complain a lot about how life isn't fair. Maybe that is the real problem.
Posted 5/1/2008 12:15 AM by TheTheologiansCafe Xanga True Member Xanga Lifetime Member - reply

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As I write this, I'm waiting for the link to load so that I may, too, send a letter to the Make-A-Wish foundation.
I have had multiple friends who have been diagnosed with mental illnesses - some with multiple. It isn't something to garner attention, and it IS a very very VERY real problem. I have watched them battle their demons and only sometimes do I feel like my love and attention help them at all. I think if society stopped ignoring that there are unseen scars under the most convincing facades then... maybe some of my friends wouldn't feel this way.

write4liberation, above, said that they would pray for you and this cause... and like they said, I don't know whether that interests you or not, but it's what I do. So I will.
Posted 5/1/2008 12:19 AM by cyanidebutterfly - reply

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maybe because physical illness are more tangible and till the point of incurable.
however, there are still hope for mental illness unless you give up on yourself.

but i think when someone suffer from mental illness that person doesnt need another ipod or trip to disneyland. they can always do it after they have been cured and has not taken their own life.

(and i hate the way those teachers treat your sister.)

stay strong.

Posted 5/1/2008 12:21 AM by goodbyedinner Xanga True Member - reply

Hi dear,
In a way I kind of understand. I can't say I fully understand, but I can say partially... my twin sister and my 16 year old sister both passed away on the same day.
I am so sorry that you were never shown any kindness in your time of loss... I hope you'll take an "hug" from someone you don't know and maybe that will make up for a bit of the loneliness you've had to go through.
*hugs*
Posted 5/1/2008 12:22 AM by Laurie - reply

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That shouldn't be true. I think it's horrible that you and your grief were not acknowledged. You should have been.

Mental illnesses are tricky to deal with. I like your idea of asking the Make A Wish foundation to allow mentally ill patients an opportunity to make a wish as well, but I don't think that it is equatable with cancer or other terminal illnesses because those are guaranteed to kill their victims (if they are, in fact terminal) whereas a mental disease, with the right treatments and enough patience should eventually be cured. (My sister is also depressed and it's horrible to see how many years her depression has taken from her and how hard it is to find a cure for something that is supposedly well understood.)

I agree with write4liberation. It is hard to see a mental illness, so often we don't acknowledge them. Also they are sometimes embarrassing for the people who have them because not everyone believes mental diseases exist (which I think is stupid and intolerant.)

I wish you the best.
Posted 5/1/2008 12:24 AM by TearsKeepAFalling Xanga True Member - reply

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I'm so sorry to hear about your sisters and your own personal struggle.

Society doesn't look at mental illness as a potentially life-threatening illness because they don't understand it. Ignorance is bliss, right? Not always. Too many people believe it's a choice, and that the severely depressed have chosen the path they're walking blindly down through other life choices. They don't understand that it's NOT a choice. They don't understand that once you're down, it's HARD to get back up, and near impossible without love and medical attention. The best thing anyone can do is provide awareness. Writing this post is one way to get the word out and I commend you for it.

For your other readers that might stumble across this:

www.suicide.org
www.save.org

Nobody should have to suffer the pain of severe depression. Nobody should have to suffer the pain of losing a loved one to depression and suicide. I did. It hurts. I can't imagine losing 2 sisters.

If you (or anyone else that reads this) have a Facebook, look up the group Four guys, one destination, one mission: Suicide Prevention.

I do hope you can find a way to ease the pain. I am truly sorry. 

Posted 5/1/2008 12:26 AM by LiFeS_LiTTlE_SEcREtS - reply

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@goodbyedinner - 



Not all mental illnesses are curable or even easily treated.
Posted 5/1/2008 12:27 AM by tjordanm - reply

Visit LiFeS_LiTTlE_SEcREtS's Xanga Site!
And my dad was diagnosed with Stage 4 cancer last September, so I do fully understand both sides of the story. They are both awful.
Posted 5/1/2008 12:29 AM by LiFeS_LiTTlE_SEcREtS - reply

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I totally agree with you. We still live in a society in which the mentally ill are looked upon with a sense of disregard. "Suck it up" and "deal with it" often are said.

My fiance suffers from Post Traumatic Stress Disorder, and I am bordering on bipolar. My lows led to a suicide attempt three years ago. No one noticed.

My sister came home because she sprained her wrist the day before. She was acknowledged.

I will be writing to the Make A Wish Foundation. You are doing a very good thing. It's about time awareness was brought to the issue of mental illness being of equal importance as the physical illnesses.

Cheers,

Skylar
Posted 5/1/2008 12:31 AM by skylar_rose - reply

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i'm sorry for what happened

i know what its like to have mentally ill siblings...
Posted 5/1/2008 12:35 AM by xpureinn0cenc3 - reply

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I don't know what to say. Really don't, because I haven't felt immense physical pain in my life, such as getting cancer.
However, I'll be honest, I was diagnosed with anxiety and depression from a psychiatrist, for reasons I don't feel like explaining here. Psychological pain is very unique, I don't know how to explain it. Perhaps it can escalate to the point of immense physical pain. But, I do know that the mind is a very powerful instrument we all have, we can alter reality to our own liking.

I hope you can come through this, as I said, don't underestimate the mind.
Posted 5/1/2008 12:37 AM by daavidd Xanga True Member - reply

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Imagine have a terminal illness AND a mental condition or two...  I don't think this is a contest.
Posted 5/1/2008 12:38 AM by bluejacky - reply

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You've captured my heart...
people can take advantage of mental illnesses. it's not really something you can prove.

i guess, it's just easier to give to those you're sure need it. i mean.... with research, maybe they can discover the high levels of certain hormones that trigger depression, but until then, it's just to risky to give to someone who looks healthy but acts gloomy.

like... i was depressed. and... in order to heal, the healing must come from within. no, if you're depressed and you want to kill yourself, a trip to hawaii isn't going to make you feel all that better.

putting myself in the mindset of who i was before, i'd probably sit staring into the blaring daylight into the waves and wonder if it was time to drown myself.

you can't solve mental problems with that kind of stuff. it just doesnt work. and perhaps the problem is that there isnt enough mentoring for those who are ill with mental diseases.

here, you get a mini. sharing the love.
Posted 5/1/2008 12:44 AM by boredjm - reply

Coming from someone who also has a mental illness and has experienced much of what you have (and so knows where your words come from):

GET OVER YOURSELF.

I am sorry about your sisters. Really, really. But Make-a-Wish is not the only foundation out there. It's hard to offer condolences for suicides because people don't quite know how to handle them. It's easier for people to articulate polite offerings of sympathy when someone is dealt an untimely death when they didn't ask for it. Even though a person who commits suicide has to be a little ill, and they did not ask for that, their death is certainly by their own hands, and that makes some people feel uncomfortable for it.

I'm also sickened by how you can't just feel a little touched at how your community has pulled together from your friends. C'mon, he has a terminal disease - the focus can't be entirely on you. We all have our own crap to deal with. You're not the only person on this planet with invisible scars. You're so intent on getting someone to see your own scars: try looking for other people's. Sometimes it's hard to find them. Sometimes it's hard to know what to say. And sometimes you want them to get over their own problems and learn to live on past their tragedies - just like you have to get over all the terrible things that have happened to you and live on, you know?

I dunno, I guess just the way your entry sounds, it's like your putting all the effort of your demon-battling onto others. If it's really your own battle, try fighting it for yourself sometime. You'll see, it's pretty damn hard. That's why it's so hard for other people to fight it for you, too.

Posted 5/1/2008 12:50 AM by malbeth - reply

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i agree, it is not a contest. and a mentally ill child shouldn't need a trip to disney land to feel loved, it should be coming from their family and friends. if it love that "cures" the pain, than something physical would not heal them. the idea is good, but not completely thought out. i've worked as a counselor for kids ages 5-16 who are all currently in the midst of fighting cancer. the camp was designed so they could just be normal, go play with other kids, make messes, go swimming, fishing etc etc... it's not easy for them either, it's not a joy ride just because they're being given toys and candy. most of them don't want it because they don't want to feel special, they don't want to feel different because that difference means that they are dying.

as stated, mental illness and physical illness is no contest. although both illnesses, they are seperate contexts.
Posted 5/1/2008 12:51 AM by mark__Twain - reply

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I am so sorry for your pain and hope that you are able to find peace within yourself.  Even with the millions of people around us, it's very easy feel completely alone in this world.  I also agree that mental illnesses and neurological disabilities should be acknowledged by society and the medical industry as the serious issues that they are.  A cancer patient would be given treatment until well regardless of how many visits it took.  However mental illness/neurological disorders are given a random number of visits per year by insurance companies regardless of the individual patients needs.  This is WRONG.  I will be sending a letter to the Make A Wish Foundation in support of you.  A very well written piece.  Good job!
Posted 5/1/2008 12:52 AM by BarbisBlogPlace - reply

Visit UR_MUSE's Xanga Site!
Psychiatry is a profit driven, quack pseudoscience. I think it's extremely rude and disregardful towards people with real illnesses, physical illnesses to suggest that people who are depressed i.e. too whiny and self-absorbed to cope with their emotions should be allowed to siphon off funding from programs geared to help those who are truly in need. Everyone has problems and hardship in their lives, and there are billions of people in this world who probably lead a much harder life than you. I think you should focus more on working through your personal problems rather than trying to mooch limited and already properly allocated resources off of society.
Posted 5/1/2008 12:56 AM by UR_MUSE Xanga True Member - reply

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When I was 15, my sister (17) died suddenly of an undetected heart condition that we've now learned my mother and younger sister both have. To suddenly lose someone like that was devestating and though close friends offered great support, I too recieved no sympathy cards or condolences. Neither did I recieve any understand from my teachers when my grades began to slip, but after losing a sister, school didn't seem as important at the time. To top it off, my father is incredibly mentally ill, suffering from schizophrenia, OCD, social anxiety, depression, and bipolarity. So I can see where you're coming from. But I think the reason these types of things go unnoticed is that it makes people uncomfortable because they don't understand. No one knows how to react when they hear that my sister died, so I get an awkward "I'm sorry for your loss". The same goes for the mental illness situation. It's not as tragic and terminal as cancer, so they don't see it as something that's as serious. It's very unfortunate, but know that there's others who feel your pain.
Posted 5/1/2008 12:59 AM by the_shela - reply

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@TheTheologiansCafe - And someone who has a physical illness never bitches about life? That was a pretty biased statement.

Posted 5/1/2008 1:02 AM by CaitlynMarie89 - reply

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@UR_MUSE - I think you just won the award for ignorant comment of the day. There is some truth in the fact that depression is probably so over diagnosed everyone at one point or another thought they had it. There is a difference in what you call "whining" and someone with depression. I suggest you do your research before you make such a statement. Depression, Schitzophrenia, Anxiety Disorders, Bi-Polar, etc are diseases. Psychiatry helps, if it didnt it wouldnt exist. The fact that you think people who are trying to get help and make their lives better are "mooching" off society is probably the most ass-backwards thing ive heard in a long time. Do you research but more importantly UNDERSTAND what you're talking about.

Posted 5/1/2008 1:05 AM by CaitlynMarie89 - reply

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@malbeth - get over yourself.  people with mental illnesses do not choose to be depressed/suicidal/anything like that.  it is because of attitudes like yours that the communities do not understand depression.  depression is caused b/c of a chemical deficiency in your brain.  did you get that?  PEOPLE DO NOT CHOOSE DEPRESSION.  IT CHOOSES THEM.  frankly you disgust me.  i don't normally call out people but you need to be called out.  i do not know what your problem is, but i hope you get over it enough to understand that there are people who don't know why they feel like that.  it can be genetic.  do you know what that means?  that means that it runs in the family.  just like other illnesses can.  i think everyone who has a problem with mental illness can shove it up theirs.  you can't know unless you have been there.  you do not know.  mental illness is awful.  you can't explain why you feel like that you just do.  there are people who fake it.  sure, but people have been faking "normal" illnesses for a long time.  what else is new?  try reading up on something before you completely bash it.  there are people in every profession who are money driven people who don't give two cents about anyone else.  i like whoever said that they are both illnesses in seperate contests.  b/c they are.  they aren't the same and people can't group them together.  you don't know me and you probably don't know the person that originally wrote this entry.  if you don't know me and my story how the hell can you judge me?  you don't know where i've been or where i'm going.  i don't care what "reasons" you give that mental illness isn't real.  it is real.  some people go about it wrong but it is real.  i hope one day you come to terms with your ignorance.  they say ignorance is bliss but frankly you're still stupid to me. 

-marti

to whoever wrote this blog.  you are brave.  good job.  it is hard to go against the crowd. 

to ur_muse.  see the first part.  i forgive you for being an ignorant jackass though. 

Posted 5/1/2008 1:08 AM by marti33 - reply

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By the way, the Cystic Fibrosis Foundation doesn't participate in the Make-A-Wish Foundation.  Don't assume all 'terminals' get something cool because they're dying, and don't assume they don't have SEVERE depression from the fact that they have to face life every day knowing they're dying, while kids all around them get to smoke and drink and have all kinds of fun.  And bipolar isn't choosy, there are plenty of people with cancer and other nasty illnesses who also deal with mental and emotional challenges.

I've watched people die, I've lost family, I have family with mental illnesses, I am very familiar with bipolar and cutting and family in a psyche ward., and I'm really confused what your point is with this post.  I have lived for 20 years with devastating pain from neurological involvement with my illness, surviving depression along with it, on top of being born with Asperger's Syndrome.  No one ever handed me anything for all the stuff I'm going through, either.  I really don't think Make-A-Wish is going to make me feel better about any of this.

My illness also cannot be eye witnessed.  For twenty years I've heard, But you LOOK ok...  How am I supposed to look?  My liver swelled up this winter and I couldn't eat for two months.  But I LOOKED ok.

Pain is pain is pain, whether it's in your head, your heart, or your body.  Or all 3.  I'm sorry you have pain.  I'm sorry we all have pain.  But when you throw it out like it's someone's fault, it's hard to empathize.

Posted 5/1/2008 1:09 AM by bluejacky -